The number one question I’m emailed is: “How can I get help for my misophonia?” or “my child’s misophonia?”
What follows here is everything I know about potential misophonia diagnosis and treatment from resources which I believe to be reputable.
But before we get started please remember…
Misophonia isn’t ‘officially’ recognised as a disorder yet in most countries
We’re all working hard to change this but It’s important to remember that misophonia still isn’t officially recognised yet by the DSM-5 in the USA (the Diagnostic and Statistical Manual of Mental Disorders) or by the WHO (the World Health Organisation). These two entities that dictate what’s perceived as a medical disorder in both the USA and much of the world.
Why is this important to bear in mind?
Until misophonia is ‘officially’ recognised it will be hard pin down a truly effective, unified and universally accepted approach when it comes to treatment and diagnosis. There is, quite literally, no manual yet. That’s not to say that there aren’t amazing minds working on amazing treatments, it just means that we need to be really careful when it comes to managing expectations.
There are lots of so-called cures and madcap treatments out there. Before you part with any of your hard earned money please read this first: misophonia treatment and the need for ethics and regulation.
Ok, I get it! There are no definitive answers yet, just give me the resources
This is a small list at the moment but hopefully this will grow as more audiologists, neurologists and regulated medical professionals with a good degree of knowledge and expertise in misophonia come forward.
For readers based in the UK
Dr Doris Bamiou, UCL – You can visit the website here
Professor Bamiou is a professor of Neuroaudiology at the Ear Institute, Faculty of Brain Sciences. Her details were passed onto me by the good folk at Misophonia International. Professor Bamiou is extremely knowledgable in the field of misophonia and may be able to point individuals to someone who can offer diagnosis or treatment.
Henrietta Roe, Harley Street Hearing – You can visit the website here
Henrietta is a top audiologist based in London. A few years ago I was referred to her for a different ear-related issue but while I was there I spoke to her about misophonia and hyperacusis. She was able to run tests for hyperacusis (a misophonia like aversion to volumes over a certain threshold) and confirm that I had it. She also understood, really understood, misophonia. Her philosophy was about referring patients for non-invasive, talking exercises and therapy.
For readers based in the USA and the rest of the world
The Misophonia International team have created a fantastic resource called Misophonia Providers which maps out the details of reputable misophonia treatment providers. It includes audiologists, counsellors, doctors, neurologists, occupational therapists and more. There’s a helpful overview of the kind of treatment you might expect from the different disciplines here.
At the time of writing all but one of these are US based (with the exception of Dr Vulink in The Netherlands) but this directory will grow over time.
Free coping techniques you can try yourself
Misophonia coping techniques are something we cover quite often in Allergic to Sound. Here are some of the most effective strategies we’ve come across over the years.
Make sure you also check out the comments sections where others share their tips.
Can you help?
Are you a registered audiologist, neurologist or occupational therapist with experience working with misophonia patients? Maybe you have misophonia and have received helpful diagnosis and/or treatment from one of the above. If so please drop me a line here.